Sorry I am a little delayed with my post. Peyton did very well in surgery. He had his scope where they found him to have a swollen grade 1 laryngeal cleft. We are having a modified barium swallow study redone at BCH Monday. From there we may or may not surgically repair the cleft.
The tethered cord surgery went well as well. Dr. Robinson said when she went to release the cord it did recoil a fair amount so she believes that there was some tethering. We met Peyton back in the PACU around 10:30am. He woke up irritable and fussy so we began giving him doses of morphine. They did not seem to help. He continued to get more and more agitated. We then tried valium. It had an adverse effect. He was flailing and screaming crying at the top of his lungs. We tried benadryl, ativan. tylenol...etc. Anesthesia came by to assess, neuro, pain, anesthesia again...nobody could figure out what was going on. We decided to stop the morphine and narcotics and replace with tylenol/motrin every three hours. As the morphine seemed to leave his system we got a much less irritable baby boy. The poor thing cried for ten hours straight. I felt awful. All the while he has to lay completely flat for 48 hours! How do you tell a 13 month old that they have to stay completely flat for two days?! Needless to say he has been doing remarkable. I am in total awe of this little guys strength, tenacity,and spirit. He faces adversity better than any other human I know. As I have said before...I have a lot to learn from this precious soul. xo
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