1/29

Unfortunately, I don't have too much to update. We had a snowstorm last night that brought a couple inches of fresh snow to Chapel Hill. It was pretty to look at from our room. Other than that I have noticed that the steroids that they are trying to slowly wean Peyton off of are making him ravenously hungry...all...the...time. We are kind of in a holding pattern right now. Seeing that we are 'choosing' to go to Boston Children's UNC will not transfer us so we will be discharged. The case manager at UNC is working to help make sure that they don't discharge us, have us drive to Boston only to find out they don't have any beds. Boston is waiting to receive all of Peyton's records (and it is no short story.) Once they have received everything which should be tonight or tomorrow morning they will contact our insurance and verify everything. From there they will communicate with UNC that we are good to go and we will head up the road. I don't foresee this happening until at least Friday, sigh. We should know more tomorrow and I will update as soon as I hear anything. Goodnight.

 View from our window

 Hungry boy

Starving boy