Tuesday, February 25, 2014

2/25

It has now been forty days in a hospital. I never thought I would say that. That being said, I remain positive and Peyton remains in high spirits. The weekend was quiet. Our goal was to get Peyton to eat. Once they took him off of the Flagyl and switched him to the Venco we saw a change in Peyton. From what I hear the flagyl is pretty harsh and it made Peyton fussy as well as sick after eating. We had some small successes getting Peyton to eat. He was barely meeting what he needed to minimally consume on a days basis but we got the team to agree to wait until Monday to discuss the ng tube because after having three different IV nurses attempt to get an IV in we were successful. While getting the IV in they drew blood to do a CBC which came back normal.
Yesterday they did a modified swallow study. During this study we found out that Peyton is in fact aspirating on liquid, both honey and nectar consistencies, as well as purees. They put Peyton on NPO (no oral feeds) until the team regroups to discuss a plan. They have scheduled for ORL to come today at some point and scope his vocal cords. Hopefully the reason to his aspirating is swelling of the vocal cords that will in fact subside over time and they will shut. Worst case scenario (which Jenning's nurse Dori finds hard to believe) is that his vocal cords were cut during surgery. Seeing that he recovered so well post surgery and does make some sound now we are hopeful that is not the case. Once I get the results from ORL I will let you know. Until that time I pray that this is just another small bump in the road of Peyton's recovery that can be easily solved.

1 comment:

  1. Keeping you all in my prayers. You all are amazing - xoxo!

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